HB3494
View on ILGAHEALTH DATA PRIVACY ACT
What this bill does
Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any person to sell or offer to sell health data concerning an individual without first obtaining valid authorization from the individual. Provides that a valid authorization to sell individual health data must contain specified information; a copy of the signed valid authorization must be provided to the individual; and the seller and purchaser of health data must retain a copy of all valid authorizations for sale of health data for 6 years after the date of its signature or the date when it was last in effect, whichever is later. Sets forth provisions concerning the consent required for collection, sharing, and storage of health data. Provides that an individual has the right to withdraw consent from the processing of the individual's health data. Provides that it is unlawful for a regulated entity to engage in discriminatory practices against individuals solely because they have not provided consent to the processing of their health data or have exercised any other rights provided by the provisions or guaranteed by law. Sets forth provisions concerning an individual's right to confirm whether a regulated entity is collecting, selling, sharing, or storing any of the individual's health data; an individual's right to have the individual's health data that is collected by a regulated entity deleted; prohibitions regarding geofencing; and individual health data security. Provides that any person aggrieved by a violation of the provisions shall have a right of action in a State circuit court or as a supplemental claim in federal district court against an offending party. Provides that the Attorney General may enforce a violation of the provisions as an unlawful practice under the Consumer Fraud and Deceptive Business Practices Act. Defines terms. Makes a conforming change in the Consumer Fraud and Deceptive Business Practices Act.
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Pipeline Progress
Current stage: Crossed Chambers · Last action 144 days ago
How does a bill become law in Illinois?
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Introduction of Bill
A member of the Senate or the House introduces a bill, which is assigned a unique identifying number (e.g., "H.B. ___" for House bills and "S.B. ___" for Senate bills). If not enacted, it must be reintroduced in the next General Assembly with a new number.
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Committee Work — Hearings
The bill goes to the appropriate committee, which holds hearings to gather expert opinions and determine the need for the legislation.
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Committee Work — Markup, Amendments, Report
The committee may make amendments to the bill. If approved, a committee report endorsing the bill is issued.
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Floor Debate
The bill is debated and can be further amended. The debate transcripts are accessible online for public viewing.
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Passage and Consideration in Second Chamber
If the bill passes in the first chamber, it moves to the second chamber for a similar review process. If both chambers approve, it goes to the governor.
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Gubernatorial Action
The governor can sign the bill into law, veto it, or take no action (resulting in an automatic law after 60 days). The type of veto can be total or amendatory. Once signed, the bill becomes a Public Act and is assigned a Public Act number.
Sponsor Context
Public Engagement
Witness slips
50 slips filed. Proponent / opponent / no position as filed with the committee.
| Name | Organization | Representing | Position | Hearing committee | Hearing date |
|---|---|---|---|---|---|
| Anne McDermott | self | self | Proponent | Judiciary - Civil | 2025-03-20 |
| Brittany Poppen | Self | Self | Proponent | Judiciary - Civil | 2025-03-20 |
| Carrie Felix | self | self | Proponent | Judiciary - Civil | 2025-03-20 |
| Cheryl Jones Das | Self | Self | Proponent | Judiciary - Civil | 2025-03-20 |
| David Bythewood | Constituent | Self | Proponent | Judiciary - Civil | 2025-03-20 |
| David Schwartz | Self | Self | Proponent | Judiciary - Civil | 2025-03-20 |
| Deborah Fenner | Self | Self | Proponent | Judiciary - Civil | 2025-03-20 |
| Dennis Brennan | DuPage County Health Department | People of DuPage County | Proponent | Judiciary - Civil | 2025-03-20 |
| Karen Goldman | Self | Self | Proponent | Judiciary - Civil | 2025-03-20 |
| Kathryn Luedke | She Votes IL | Proponent | Judiciary - Civil | 2025-03-20 | |
| Lindsay Morrison | self | self | Proponent | Judiciary - Civil | 2025-03-20 |
| Madeline Miley | Self | Self | Proponent | Judiciary - Civil | 2025-03-20 |
| Maureen Keane | She Votes Illinois | She Votes Illinois | Proponent | Judiciary - Civil | 2025-03-20 |
| Maureen Vana | Self | Self | Proponent | Judiciary - Civil | 2025-03-20 |
| Paula Clark | Self | Self | Proponent | Judiciary - Civil | 2025-03-20 |
| Rachel Becknell | Constituent | Self | Proponent | Judiciary - Civil | 2025-03-20 |
| Stephanie Holt | none | self | Proponent | Judiciary - Civil | 2025-03-20 |
| Susan Bramlet Lavin | Illinois National Organization for Women | Illinois NOW | Proponent | Judiciary - Civil | 2025-03-20 |
| Anne McDermott | self | self | Proponent | Judiciary - Civil | 2025-03-19 |
| Carrie Felix | self | self | Proponent | Judiciary - Civil | 2025-03-19 |
| Cheryl Jones Das | Self | Self | Proponent | Judiciary - Civil | 2025-03-19 |
| David Bythewood | Constituent | Self | Proponent | Judiciary - Civil | 2025-03-19 |
| David Schwartz | Self | Self | Proponent | Judiciary - Civil | 2025-03-19 |
| Deborah Fenner | Self | Self | Proponent | Judiciary - Civil | 2025-03-19 |
| Karen Goldman | Self | Self | Proponent | Judiciary - Civil | 2025-03-19 |
| Kathryn Luedke | She Votes IL | Proponent | Judiciary - Civil | 2025-03-19 | |
| Khadine Bennett | ACLU of Illinois | ACLU of Illinois | Proponent | Judiciary - Civil | 2025-03-19 |
| Lindsay Morrison | self | self | Proponent | Judiciary - Civil | 2025-03-19 |
| Madeline Miley | Self | Self | Proponent | Judiciary - Civil | 2025-03-19 |
| Maureen Keane | She Votes Illinois | She Votes Illinois | Proponent | Judiciary - Civil | 2025-03-19 |
| Maureen Vana | Self | Self | Proponent | Judiciary - Civil | 2025-03-19 |
| Paula Clark | Self | Self | Proponent | Judiciary - Civil | 2025-03-19 |
| Rachel Becknell | Constituent | Self | Proponent | Judiciary - Civil | 2025-03-19 |
| Randy Wells | Illinois Association for Behavioral Health | Illinois Association for Behavioral Health | Proponent | Judiciary - Civil | 2025-03-19 |
| Sean McDermott | SR McDermott Consulting | Northern Illinois Public Health Consortium | Proponent | Judiciary - Civil | 2025-03-19 |
| Stephanie Holt | none | self | Proponent | Judiciary - Civil | 2025-03-19 |
| Susan Bramlet Lavin | Illinois National Organization for Women | Illinois NOW | Proponent | Judiciary - Civil | 2025-03-19 |
| Tim McLean | Illinois Trial Lawyers Association | Illinois Trial Lawyers Association | Proponent | Judiciary - Civil | 2025-03-19 |
| Carl Gutierrez | Chicagoland Chamber of Commerce | Chicagoland Chamber of Commerce | Opponent | Judiciary - Civil | 2025-03-20 |
| Donovan Griffith | Illinois Manufacturers' Association | Illinois Manufacturers' Association | Opponent | Judiciary - Civil | 2025-03-20 |
| Carl Gutierrez | Chicagoland Chamber of Commerce | Chicagoland Chamber of Commerce | Opponent | Judiciary - Civil | 2025-03-19 |
| Donovan Griffith | Illinois Manufacturers' Association | Illinois Manufacturers' Association | Opponent | Judiciary - Civil | 2025-03-19 |
| Ellie Bledsoe | Planned Parenthood Great Rivers Action | Planned Parenthood Great Rivers Action | Opponent | Judiciary - Civil | 2025-03-19 |
| Hunter Young | ATA Action | ATA Action | Opponent | Judiciary - Civil | 2025-03-19 |
| Joe Handley | Illinois Broadband & Cable Association | Illinois Broadband & Cable Association | Opponent | Judiciary - Civil | 2025-03-19 |
| Keith Wheeler | Illinois Chamber of Commerce | Illinois Chamber of Commerce | Opponent | Judiciary - Civil | 2025-03-19 |
| Marissa Jackson-Donnell | Planned Parenthood Great Rivers Action | Planned Parenthood Great Rivers Action | Opponent | Judiciary - Civil | 2025-03-19 |
| Rob Karr | Illinois Retail Merchants Association | Illinois Retail Merchants Association | Opponent | Judiciary - Civil | 2025-03-19 |
| Tyler Diers | TechNet | TechNet | Opponent | Judiciary - Civil | 2025-03-19 |
| Dave Gross | Illinois Health and Hospital Association | Illinois Health & Hospital Association | No Position On Merits | Judiciary - Civil | 2025-03-19 |
Roll-call votes
Total votes and outcome per event. Deciding vote = margin of 1; those voters on the winning side could have changed the outcome by flipping.
| Date | Chamber | Type | Description | Yea | Nay | Present | NV | Outcome | Margin | Deciding voters |
|---|---|---|---|---|---|---|---|---|---|---|
| H | Committee | Judiciary - Civil | 13 | 7 | 0 | 0 | Passed | 6 | — |
Action History
16 actions recorded. Last action: 2026-02-17 — Placed on Calendar 2nd Reading - Short Debate. Each action's meaning and outcome signal are classified automatically.
All actions (table)
| Date | Chamber | Action | Category | Signal |
|---|---|---|---|---|
| 2025-02-07 | House | Filed with the Clerk byRep. Ann M. Williams House Rule 6(b) | Introduction & Filing | — |
| 2025-02-18 | House | First Reading Senate Rule 5-1(d)/5-2; House Rule 37(d)/38 | Introduction & Filing | — |
| 2025-02-18 | House | Referred toRules Committee Senate Rule 3-8(a); House Rule 18(a) | Committee Assignment | — |
| 2025-03-11 | House | Assigned toJudiciary - Civil Committee Senate Rule 3-8(a); House Rule 18(b) | Committee Assignment | — |
| 2025-03-19 | House | Do Pass / Short DebateJudiciary - Civil Committee; 013-007-000 Senate Rule 3-11(a)(1); House Rule 22(a)(1), 52(b) | Committee Action | Positive |
| 2025-03-19 | House | Placed on Calendar 2nd Reading - Short Debate Senate Rule 4-4(7-8)/5-2; House Rule 31(8-9)/38/52 | Floor Process | Positive |
| 2025-03-19 | House | Added Co-SponsorRep. Anne Stava Senate Rule 5-1(a); House Rule 37(a) | Co-Sponsorship | Mild + |
| 2025-03-24 | House | Added Co-SponsorRep. Kelly M. Cassidy Senate Rule 5-1(a); House Rule 37(a) | Co-Sponsorship | Mild + |
| 2025-03-26 | House | Second Reading - Short Debate Senate Rule 3-12(a)/5-4(a); House Rule 24(a)/40(b)/52(a)(1) | Floor Process | Positive |
| 2025-03-26 | House | Held on Calendar Order of Second Reading - Short Debate Senate Rule 4-4(7-8)/5-2; House Rule 31(8-9)/38/52 | Floor Process | — |
| 2025-03-26 | House | Added Co-SponsorRep. Barbara Hernandez Senate Rule 5-1(a); House Rule 37(a) | Co-Sponsorship | Mild + |
| 2025-04-09 | House | Added Co-SponsorRep. Camille Y. Lilly Senate Rule 5-1(a); House Rule 37(a) | Co-Sponsorship | Mild + |
| 2025-04-11 | House | Rule 19(a) / Re-referred toRules Committee House Rule 19(a); Senate analog: Rule 3-9(a) | Deadlines & Re-referrals | Mild − |
| 2026-02-10 | House | Chief Sponsor Changed toRep. Mary Beth Canty Senate Rule 5-1(d)/4-4(9-11); House Rule 37(d)/31(10-12) | Cross-Chamber | — |
| 2026-02-17 | House | Approved for ConsiderationRules Committee; 003-002-000 Rule 3-8(b) | Committee Assignment | Positive |
| 2026-02-17 | House | Placed on Calendar 2nd Reading - Short Debate Senate Rule 4-4(7-8)/5-2; House Rule 31(8-9)/38/52 | Floor Process | Positive |